RareGuru: Rare Diseases

The developer claims to offer features targeting these health conditions.

• Medication adherence
• Multiple sclerosis
• Skin

Features that facilitate health data generation, collection, sharing and interpretation by patients.

Manual monitoring

Patients can manually record information about their health (e.g. blood pressure data, anxiety assessments, mood journals, etc.).

Manual data exporting

Patients can manually export data for a clinician or caregiver (e.g. send a report by SMS or email).

Features that promote self-care and self-management of conditions.

Objective planning

Patients may set objectives or plan actions for themselves to achieve their health goals.

Online community

Patients may access peer support and interact with clinicians or other patients to achieve their health goals.

A point is provided to this app if there is at least one peer-reviewed study demonstrating the app's acceptability, as found on a research database (e.g. Pubmed, Medline). The evidence is in the form of a clinical trial, a feasibility study, a review, a survey or other published evidence.

A point is provided to this app if it is licensed by at least one regulatory organization (e.g. FDA, European Union, Health Canada). A regulatory decision means that a regulatory body has approved marketing for medical purposes after assessing supporting evidence and the tool's safety.

A point is provided to this app if health professionals are involved in its development.

A point is provided to this app if it is recommended by at least one independent non-regulatory organization, such as health technology assessment agencies, government, clinical association or research institution.

A point is provided to this app if there is at least one peer-reviewed study proving the app's clinical value, as found in a research database (e.g. Pubmed, Medline). The evidence is in the form of a clinical trial or other published clinical evidence.

A point is provided to this app if there is at least one peer-reviewed study proving the app's economic value, as found in a research database (e.g. Pubmed, Medline). The evidence is in the form of an economic study such as a cost-effectiveness analysis.

Other studies providing additional context that may be considered for decision-making. This information does not affect the clinical robutness score.

A point is provided to this app if it does not give information about other apps installed on the device (creator, name, type of account, etc.).

A point is provided to this app if it does not give information about the device's hardware components, which could be used to track the user on different web services.

A point is provided to this app if it does not give information about the mobile phone services and provider, which could be used to track the user on different messaging and phone services.

A point is provided to this app if it does not give information on the phone number, which could be used to follow the user on services that use this data or to attack using spam, phishing or two-factor authentication (2FA) tactics.

A point is provided to this app if its privacy policy clearly indicates how a user may access, rectify, delete and object to the information collected about them.

A point is provided to this app if its privacy policy includes the contact information of its data privacy officer.

A point is provided to this app if its privacy policy indicates which information privacy legislation(s) the developer complies with (e.g., HIPAA, GDPR).

This information does not affect the privacy score.

This app requests access to some features of your device. Make sure that each of these accesses is relevant to you. This information does not affect the privacy score.

Camera

• Allows the app to take pictures, record videos and use a live output of the camera view.

Location

• Allows the app to access the exact location of the device (precision of 3 to 5 m) in the background.
• Typically this allows the app to see where the user is down to a specific address or building and track journey.

Photo library

• Allows the app to access photos, media and files on your device.

A point is provided to this app if it has been updated at least 1 time in the last 6 months, significantly reducing technical vulnerability and associated risks.

A point is provided to this app if it cannot gain administrator access to your device.

A point is provided to this app if it cannot gain debugging access to your device, which could expose privileged details and sensitive information.

A point is provided to this app if it declares compliance with one or more security certifications (e.g. ISO/IEC 27017, ISO 27001, PCI, SOC 2, HITRUST, MASVS).

A point is provided to this app if it is easy to understand (grade level below 8) as defined by the Automated Readability Index (ARI) readability tool.

A point is provided to this app if user satisfaction averaged at least 4 out of 5 stars on App Store.

App Store

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A point is provided to this app if it is free of unrelated ads during app use.

A point is provided to this app if it provides appropriate resources to adequately help users who experience problems with the app (e.g. support section, knowledge base, FAQs).

Support link

A point is provided to this app if it proposes an overview of the privacy policy of fewer than 150 words that includes a description of the Personally Identifiable Information (PII) processed, purpose and retention policy.

A point is provided if the app manufacturer declares compliance with one or more design standard(s) related to accessibility, usability, and inclusivity (e.g. ISO 9241, WCAG, ADA, etc.).